Boy With Rare Brain Disease Treated at GH

Parents of Boy with Brain Disorder Raise Money for Gene Therapy

This little boy has a disease so rare, it doesn't even have a name

Growth hormone (GH) deficiency

Boy with ultra-rare disease begins groundbreaking gene therapy

The rare brain disease which left a Sevenoaks boy, 7, fighting for

This little boy has a disease so rare, it doesn't even have a name

Progeria - Wikipedia

What to Expect After a GHD Diagnosis

Pituitary and Hypothalamic Tumor Syndromes in Childhood - Endotext

This little boy has a disease so rare, it doesn't even have a name